Monday, August 31, 2009
Posted by Ami Czorapinski at 3:04 PM
Wednesday, August 26, 2009
We made it back. I can't say enough about how wonderful the Believe in Tomorrow Foundation is at helping cancer families make memories. We had such a wonderful week. Although we've been to Ocean City a million times, this time was most definitely different. The boys loved every minute of the trip and for once we actually felt normal. It was just so nice.
Posted by Ami Czorapinski at 8:50 AM
Thursday, August 20, 2009
Posted by Ami Czorapinski at 7:57 AM
Monday, August 17, 2009
We're on vacation. Yes, vacation. And we're ready for a fun filled week. Today, Jeff and I have to take Joshua for a blood draw but after that, we're going to forget (as best as any cancer parent can) about the cancer and sickness and hospitals and enjoy the beach.
Posted by Ami Czorapinski at 8:47 AM
Friday, August 14, 2009
The cast is off and we're off to the beach for a week! I'll try to download pictures and update while we're there but with three boys I can't guarantee anything. Wish us luck!!!
Posted by Ami Czorapinski at 10:31 PM
Thursday, August 13, 2009
Today is Dairy Queen's miracle treat day. With every purchase of one of their delicious blizzards, a portion of the proceeds will go to support Children's Miracle Network hospitals like Johns Hopkins. What could be better than eating a blizzard and knowing that with each calorie loaded bite, you're helping sick kids like our boy Joshua! Now that's a reason to celebrate. I might just have to go twice today ;-).
Posted by Ami Czorapinski at 7:44 AM
Friday, August 7, 2009
I swear it never ends. I haven't updated because Joshua has been attached to my hip. He had a really difficult time with his most recent chemo/steroids. He lost some of his hair again so Jeff and I decided to give a buzz cut. He had severe back pain that required oxycodone for about 4 days and gained 6 pounds in a week. But that's not the worst of it. He didn't make counts on Tuesday for his spinal tap to start maintenance. That's good as it will give him a much needed break but it does make us have to move our Disney trip. So that countdown clock in the side bar will be changing as soon as I get a new date (sorry Tylar). Also, yesterday Joshua fell down the steps and hurt his broken arm. That resulted in a x-ray. The stupid ortho doctors at Hopkins didn't even want to see him until his scheduled appointment on Monday. Taking it upon ourselves, Jeff and I got him an appointment to see the "second opinion" doctor and he was able to cut the cast in case of swelling. He said the x-ray still looked good although the bones have never been even close to straight or even together for that point. Today, the arm is swollen so it's a good thing I did take him to another doctor. He's still in a little pain so we're back to the pain meds. It's never ending.
Posted by Ami Czorapinski at 2:54 PM