Monday, June 22, 2009
Posted by Ami Czorapinski at 3:12 PM
Tuesday, June 16, 2009
Posted by Ami Czorapinski at 10:11 AM
Sunday, June 14, 2009
Posted by Ami Czorapinski at 6:51 PM
Tuesday, June 9, 2009
I have a whole post about our day and everything that it involved, but I'm too spent to write tonight. I will post tomorrow. Tonight, I wanted to let you all know about an available opportunity to save a life. If you haven't registered for the bone marrow registry, they they are doing their "marrowthon" right now and you can register for free. There is usually a fee that covers all the testing and such but from June 8-22, you can join for free. PLEASE do this. It's a simple mouth swab that they send you in the mail. You follow the directions and mail it back. Unless/until you are found to be a possible match, you will have nothing else to do. You have the power to possibly save a life. Please do this. If Joshua were to relapse again, we would go to this registry to look for a donor. There are so many people out there right now waiting for a match.
Posted by Ami Czorapinski at 9:52 PM
Monday, June 1, 2009
Joshua's counts are finally starting to go up. Just not enough. His ANC has been at 0 for the past few days and finally today we went to 140. Jeff persuaded the doctors to do another draw around 4 pm and if they are above 200 they'll let us go today. If not, we'll have to wait until tomorrow's labs to see where we stand.
Meanwhile, Jeff and I have been switching off and on at the hospital. We've only been able to see each other for about an hour or so. Noah and Adam have been spending time with grandparents and Lulu isn't quite sure where she lives any more. I can't wait to get home and get back on a schedule. Haven't we done our time yet? I swear that after all our family has been through, we need a month long vacation at the end of this. Although we won't be getting a month long vacation, we do have the beach and Disney to look forward to. Now, all we have to do is get there.
Posted by Ami Czorapinski at 1:42 PM